Archive for June 2008

Homophobia in Hospice and Long Term Cancer Care

Is there a prevailing idea that cancer patients are mostly older folks?  Let me tell you there cancer -challenged gay and elderly find themselves isolated and alone or, if they are in an extended care facility, among people who share nothing of their culture, nothing of their past.   Out With Cancer launches a new effort to make hopsices and long term care facilities train their clinical and support staff in LGBT awareness and sensitivity.   Please write your stories about hospice and long term cancer care by clicking on our comment page.

Hair Loss from Chemo incites Homophobia

 A young woman who shaved off her hair in tribute to a friend who died of cancer has told how she was subjected to taunts and abuse for being bald.
“I was called baldy and people even called me a lesbian. Girls in toilets in pubs said I shouldn’t be able to use them because I was a lesbian. I just had to shrug it off but I was so angry at the time, said the Edinburgh, Scotland resident.
So, imagine that you have been out for a few years and enjoying a relatively homophobic free, love filled, happy time, and now, as a chemo patient, with your hair falling out, the dark masses start hurling “dyke” at you….not because they see you as lesbian from style or declaration, but because you have lost your hair from chemo. Please tell us your stories.

UK Lesbian and Bisexual Womens Health Survey

The largest ever European survey into lesbian and bisexual women’s health, has just been released. The report, carried out by Stonewall and De Montfort University, reveals  exclusion from routine testing for cervical cancer.

Prescription for Change, a survey of 6,000 lesbian and bisexual respondents, suggests that health services are failing to identify specific healthcare needs among Britain’s 1.8 million lesbian population. They are also failing to address specific mental health needs that many women still experience as a result of discrimination. The survey, the biggest of its kind ever conducted outside America, provides unique new statistics on the mental health, drinking and drug use of lesbian and bisexual women

One in five lesbian and bisexual women were told that they did not need a smear test.

37,000 lesbian and bisexual have been refused a smear test, even though they requested one.

This misleading information has led to one in five lesbian and bisexual women thinking that they are not at risk of cervical cancer.

49% of the people interviewed have not come out to their GP, for fears that they may be discriminated against.

Since April 2007, it has been unlawful for public services to discriminate against lesbians and bisexual women.

However, half of those questioned reported some negative experience of healthcare in the last year.

One in ten lesbian and bisexual women said that when they came out to a health worker, they were either ignored or faced hostility.

“Healthcare workers continually assume I am heterosexual and ask inappropriate questions about my relationships,” said Maya, from the South West.

“I am often lectured about safe sex and preventing pregnancy without being given a chance to say that I do not sleep with men anymore.”

However, the survey found that lesbians and bisexual women are in better physical shape than heterosexual women.

26 per cent of lesbian and bisexual women are overweight, compared to 32 per cent of heterosexual women.

Two thirds of lesbian and bisexual women smoke or have smoked, compared to half of women in general.

Nine in ten lesbian and bisexual women drink, and 40 per cent of them drink three times a week, compared to a quarter of women in general.

They are also five times more likely to have taken drugs; one in ten have taken cocaine, compared to 3 per cent on the heterosexual women.

Copies of the full report and the accompanying case studies are available at www.stonewall.org.uk/lesbianhealth.

LGBT Cancer — Survivor Tips — Tip 10

No. 10: Your attitude and beliefs are your most powerful weapon against
cancer.
I believe that deeply. There have been studies that show when you are happy
and engaged and positive, your immune system is at its strongest. When you
are depressed or unhappy, your immune system is weakened.  “The more you live your life, the more life you will have to live (an OutWithCancer phrase) ”

One of ten tips from Hamilton Jordan, the former White House chief of staff for President Jimmy Carter, a well-known force in the health community. During the past 24 years he battled four different forms of cancer and urged cancer patients to empower themselves with information.

LGBT Cancer — Survivor Tips — Tip 9

No. 9: Treat your mind as well as your body.
Just because we can’t quantify, and don’t understand the power of the mind,
to deal with disease, it doesn’t mean that attitude and the will to live is
not a powerful, powerful force in the course of an illness.
 

One of ten tips from Hamilton Jordan, the former White House chief of staff for President Jimmy Carter, a well-known force in the health community. During the past 24 years he battled four different forms of cancer and urged cancer patients to empower themselves with information.

LGBT Cancer — Survivor Tips — Tip 8

No. 8: Ultimately, find a doctor that you trust and believe in.
Find a doctor with a fighting spirit, and who thinks that they can cure you.
You tend to find doctors that reflect your own attitude. I always found
doctors that liked the fact I was aggressive and going to fight for my life.
They didn’t object to my asking a lot of questions.

One of ten tips from Hamilton Jordan, the former White House chief of staff for President Jimmy Carter, a well-known force in the health community. During the past 24 years he battled four different forms of cancer and urged cancer patients to empower themselves with information.

LGBT Cancer — Survivor Tips — Tip 7

No. 7: Understand the economics of cancer care.
You don’t want to be in a situation where your doctor wants to run a $150
test that your insurance doesn’t cover, but it contains critical information
for making your diagnosis or deciding treatment. You need to understand what
your insurance covers, and let your doctor know what you’re willing to do to
supplement that coverage to get a good diagnosis, and the best possible
treatment. If your doctor says that he wants to run another test, but
insurance won’t pay for it, find out what it is. Why does he want to run it?
Find out the cost, and determine whether you should pay it yourself. It
might save your life.

One of ten tips from Hamilton Jordan, the former White House chief of staff for President Jimmy Carter, a well-known force in the health community. During the past 24 years he battled four different forms of cancer and urged cancer patients to empower themselves with information.

LGBT Cancer — Survivor Tips — Tip 6

No. 6: Do not allow your caregivers to project their values, goals and
expectations onto you.
In my book I tell the story of a 68-year-old man who was diagnosed with PCa
(prostate cancer). And this man is in very good health other than the PCa.
His 35-year-old doctor reasoned that since his life expectancy was only five
or six years, that he recommended that the man do nothing for his PCa and
told him it would take the PCa four or five years to kill him. This man
wanted to live to be 80 or 85. He didn’t accept that. He had his prostate
removed, and many years later he’s in good health, and probably will live to
be 80 or 85. Don’t let your doctor project his or her expectations in life
out on you.

One of ten tips from Hamilton Jordan, the former White House chief of staff for President Jimmy Carter, a well-known force in the health community. During the past 24 years he battled four different forms of cancer and urged cancer patients to empower themselves with information.

LGBT Cancer — Survivor Tips — Tip 5

No. 5: If you have a poor prognosis, or a rare form of cancer, try to get to
a center of excellence.
If your doctor doesn’t believe he or she can cure you, you won’t believe
you’ll be cured.

One of ten tips from Hamilton Jordan, the former White House chief of staff for President Jimmy Carter, a well-known force in the health community. During the past 24 years he battled four different forms of cancer and urged cancer patients to empower themselves with information.

LGBT Cancer — Survivor Tips — Tip 4

No. 4: Determine upfront how broad or narrow your physicians’ experience is.
If you have something that your doctor says, “I’ve never seen this before,”
get another doctor. You want your doctor to be very familiar with your
disease.

One of ten tips from Hamilton Jordan, the former White House chief of staff for President Jimmy Carter, a well-known force in the health community. During the past 24 years he battled four different forms of cancer and urged cancer patients to empower themselves with information.