Author Archive
LGBT Cancer Support Online
Posted by: | CommentsLGBT cancer support online at www.outwithcancer.org enters its fifth year! 2010 marks the five year anniversary of Out With Cancer, our country’s first national Lesbian, Gay, Bisexual and Transgender cancer survivor support group online. Out With Cancer has helped with peer to peer and group support, providing free blogs and online connections between LGBT cancer survivors, who might otherwise be at a loss for support. Out With Cancer is a national model, and will likely be copied by many other nonprofits. All of Out With Cancer services are free and open to the public, worldwide.
LGBT Health Survey’s from UCSF
Posted by: | CommentsUniversity of California in San Francisco is studying urinary and sexual problems within two populations: 1. men who have sex with men and 2. women who have sex with women. Please consider taking the surveys or forwarding them along to others who may be interested. These studies will hopefully help gain more insight into topics that have not yet been adequately examined.
More information is listed below (first the MSM survey and then the WSW survey).
MSM
Help us improve treatment for urinary and sexual problems in men who have sex with men!
Researchers in the department of urology at the University of California in San Francisco are conducting a study on the prevalence of urinary and sexual problems in men who have sex with men (MSM). A study like this has never been conducted in this population and represents an important step forward in correcting healthcare disparities for this long neglected group.
If you are a man who has sex with men, we ask for you help in completing a TOTALLY ANONYMOUS internet based survey. Getting as many responses as possible will enhance the reliability of our results and better enable us to convince the medical community of the need to pay more attention to the health care needs of MSM.
More information is available at the following URL: http://urology.ucsf.edu/msmhealth.html
Questions? Please contact the study investigators: Benjamin Breyer, MD (bbreyer@urology.ucsf.edu ) and Alan Shindel MD (shindela@urology.ucsf.edu)
WSW
Help us improve treatment for urinary and sexual problems in women who have sex with women!
Researchers in the department of urology at the University of California in San Francisco are conducting a study on the prevalence of urinary and sexual problems in women who have sex with women (WSW). A study like this has never been conducted in this population and represents an important step forward in correcting healthcare disparities for this long neglected group.
If you are a woman who has sex with women, we ask for you help in completing a TOTALLY ANONYMOUS internet based survey. Getting as many responses as possible will enhance the reliability of our results and better enable us to convince the medical community of the need to pay more attention to the health care needs of WSW.
More information is available at the following URL: http://urology.ucsf.edu/wswhealth.html
Questions? Please contact the study investigators: Benjamin Breyer, MD (bbreyer@urology.ucsf.edu), Alan Shindel MD (shindela@urology.ucsf.edu ), and Patty Robertson, MD (robertsonp@obgyn.ucsf.edu)
Is a new Prostate Cancer awareness campaign Homophobic?
Posted by: | CommentsA national prostate cancer nonprofit is promoting the following campaign:
“Put the Man in January! Manuary is a month-long event where the boys will be boys. Do manly things! Make January into Manuary! ZERO – The Project to End Prostate Cancer recognizes that part of being a man is knowing your risk for prostate cancer and getting tested for it.
We invite you to make a New Year’s resolution to help out the prostate cancer cause by participating in something manly.
- Host a Poker Night
- Go Ice Fishing
- Grow a Beard
- Wear the Same Flannel Shirt for the Month
It’s time to Man up. What are you going to do for Manuary?”
Loading ...LGBTCANCER on Twitter over 6,000 followers!
Posted by: | CommentsThe LGBT Cancer twitter account, @lgbtcancer , has over 6,000 followers! LGBTCANCER is the fourth largest cancer nonprofit twitter account, based on a search for “cancer.”
Gay Cancer Could get $25,000
Posted by: | CommentsGay Cancer support nonprofit Malecare is in the running for the Chase Community Giving grant of $25,000 . Thank you to all of our supporters.
Prostate Cancer Calender ignores gay men
Posted by: | CommentsNew Jersey Wives Prostate Cancer Calendar is raising anger from gay men with prostate cancer. This fund raising effort by the New Jersey Prostate Cancer Coalition is using its nonprofit status to promote awareness of prostate cancer as if it is a hetero issue. These women are survivors’ wives and have posed nude for “Stand By Your Man: 12 Women in Support of a Cure for Prostate Cancer. But, clearly, they could also have found a man or two to pose for a month, too.”
Out With Cancer asks that all cancer advocacy efforts be inclusive of our community.
“Gay and Bisexual men comprising fully 10% of all men diagnosed with prostate cancer, the calender actually hurts many men, who already feel unheard and disenfranchised from the prostate cancer survivor community,” says Darryl Mitteldorf, CEO of the national gay men’s cancerl survivor support and advocacy nonprofit, Malecare. “Surely, one month in their calender could have included a gay man’s partner, along with the wives..that would truly raise awareness for everyone.” said Mr. Mitteldorf.
info@malecare.com and 212-673-4920
LGBT Cancer event in the West Midlands
Posted by: | CommentsThe Macmillan Cancer Support working with Birmingham LGBT Community Trust are organising an event to bring together people affected by cancer from LGBT communities across the West Midlands. The day will include speakers and consultations to ensure that the experiences of LGBT people are heard and help to improve the cancer support available in the region. Marilyn Meade-Brown, Community Networks Development Co-ordinator for Macmillan in the West Midlands said: “Macmillan provides practical, medical, emotional and financial help to people affected by cancer from the moment of diagnosis and throughout their cancer journey. We want to hear from LGBT people who have been affected by cancer as patients, carers, partners, family members, friends or colleagues. Your stories about your experience will help us to improve the support available in your area. Whoever you are and whatever your experience, now or in the past, we want to hear it.”
The event will take place on Saturday 17th October at BVSC, Digbeth, Birmingham and booking is essential. For further information and/or to book your place call Angela Savage : 01676 531722 or email: a.savage@macmillan.org.uk Please mention that Out With Cancer, in the United States, sent you.
Out With Cancer, our country’s first and leading national LGBT cancer survivor support and advocacy nonprofit, is profoundly disappointed and fearful about the dismissal of Langbehn vs. Jackson Memorial Hospital by the U.S. District Court for the Southern District of Florida. The ruling affirmed the hospital’s position that it has no duty, no legal obligation, to allow visitors [of any sort] in the hospital, effectively sanctioning arbitrary selection of who can and cannot visit patients. The court’s decision shows just how vulnerable same-sex couples and their families are in Florida without the protection of any statewide laws banning the discrimination of LGBT people. Out With Cancer, along with our partners in The Committee for Fair Visitation at Jackson Memorial Hospital, has been urging Jackson Memorial Hospital to adopt a comprehensive visitation policy that affirms all patients’ rights to have visitors and is inclusive of all families. In light of this decision, we are committed to increasing our efforts to ensure that same-sex couples and all families be treated with the dignity and respect they deserve.
Today, An FDA advisory committee voted to recommend approval of the vaccine Gardasil for males ages 9 to 26 to prevent genital warts, but not to prevent cancer. Actual FDA approval may or may not come, at a later date.
There’s been an alarming degree of fear mongering about the prevalence of Anal Cancer among MsM in our community. Much of this has been played out in support of Merck Pharmaceutical’s FDA application to make it’s drug, Gardisol, avaliable to boys and young men.
No data shows that Gardasil offers direct protection against cancer. Instead, the vaccine has the potential to be protective based on its ability to prevent the persistent HPV infections that can be precursors to cancer.
Gardasil acts on 4 types of human papillomavirus (HPV). Males can carry HPV and transmit it sexually to their partners.
HPV can cause genital warts and penile and anal cancer in men. According to the FDA about 200 out of 100,000 Amercian males are newly diagnosed with genital warts, every year . Penile cancer and anal cancer are much rarer.
Much more research needs to be conducted before we can say for certain that there is anything close to an epidemic or increase of Anal Cancer in our community. The national gay men’s cancer survivor nonprofit, Malecare, has been providing support and information about Anal Cancer in our community, since 1998. We have a long way to go towards understanding this disease. Meanwhile, all men should, without fail, ask about Anal Cancer with their doctors or at their local clinics.
8% of lesbians aged 50-79 develop breast cancer compared to 2% of straight women.
Posted by: | CommentsThe Stonewall Charity just completed a survey, which says that 8% of lesbians aged 50-79 develop breast cancer compared to 2% of straight women. Unpublished health data from the West Midlands also shows tobacco use among lesbian, gay, bisexual and transgender (LGBT) people along with other risk factors for cancer.
Researcher Dr Catherine Meads said, “There seems to be a high rate of breast cancer in lesbians and bisexual women, but we have no idea why this is so and it was not investigated in any published papers. Currently it is unclear whether more lesbians and bisexual women report having breast cancer because there is a higher incidence, or because lesbians and bisexual women might be surviving longer and so affecting the figures, or for some other reasons. More good quality research needs to be carried out urgently”
We at The LGBT Cancer Project — Out With Cancer, agree.
