LGBT Cancer — Survivor Tips — Tip 7

No. 7: Understand the economics of cancer care.
You don’t want to be in a situation where your doctor wants to run a $150
test that your insurance doesn’t cover, but it contains critical information
for making your diagnosis or deciding treatment. You need to understand what
your insurance covers, and let your doctor know what you’re willing to do to
supplement that coverage to get a good diagnosis, and the best possible
treatment. If your doctor says that he wants to run another test, but
insurance won’t pay for it, find out what it is. Why does he want to run it?
Find out the cost, and determine whether you should pay it yourself. It
might save your life.

One of ten tips from Hamilton Jordan, the former White House chief of staff for President Jimmy Carter, a well-known force in the health community. During the past 24 years he battled four different forms of cancer and urged cancer patients to empower themselves with information.

LGBT Cancer — Survivor Tips — Tip 6

No. 6: Do not allow your caregivers to project their values, goals and
expectations onto you.
In my book I tell the story of a 68-year-old man who was diagnosed with PCa
(prostate cancer). And this man is in very good health other than the PCa.
His 35-year-old doctor reasoned that since his life expectancy was only five
or six years, that he recommended that the man do nothing for his PCa and
told him it would take the PCa four or five years to kill him. This man
wanted to live to be 80 or 85. He didn’t accept that. He had his prostate
removed, and many years later he’s in good health, and probably will live to
be 80 or 85. Don’t let your doctor project his or her expectations in life
out on you.

One of ten tips from Hamilton Jordan, the former White House chief of staff for President Jimmy Carter, a well-known force in the health community. During the past 24 years he battled four different forms of cancer and urged cancer patients to empower themselves with information.

LGBT Cancer — Survivor Tips — Tip 5

No. 5: If you have a poor prognosis, or a rare form of cancer, try to get to
a center of excellence.
If your doctor doesn’t believe he or she can cure you, you won’t believe
you’ll be cured.

One of ten tips from Hamilton Jordan, the former White House chief of staff for President Jimmy Carter, a well-known force in the health community. During the past 24 years he battled four different forms of cancer and urged cancer patients to empower themselves with information.

LGBT Cancer — Survivor Tips — Tip 4

No. 4: Determine upfront how broad or narrow your physicians’ experience is.
If you have something that your doctor says, “I’ve never seen this before,”
get another doctor. You want your doctor to be very familiar with your
disease.

One of ten tips from Hamilton Jordan, the former White House chief of staff for President Jimmy Carter, a well-known force in the health community. During the past 24 years he battled four different forms of cancer and urged cancer patients to empower themselves with information.

LGBT Cancer — Survivor Tips — Tip 3

No. 3: Get a second opinion.
We wouldn’t buy the first computer or cellphone we looked at. Shop around
when your life is at stake. I got second opinions on all of my cancers.  You are the “decider,” when all is said and done.  AND, you are the one who,ultimately, will live with the consequences of your treatment choices.

One of ten tips from Hamilton Jordan, the former White House chief of staff for President Jimmy Carter, a well-known force in the health community. During the past 24 years he battled four different forms of cancer and urged cancer patients to empower themselves with information.

LGBT Cancer — Survivor Tips — Tip 2

No. 2: Seek and know the truth about your illness, and prognosis.
If you don’t have the facts, and don’t know the truth, you won’t make good
decisions. It takes courage to ask questions about statistics and your
prognosis.
One of ten tips from Hamilton Jordan, the former White House chief of staff for President Jimmy Carter, a well-known force in the health community. During the past 24 years he battled four different forms of cancer and urged cancer patients to empower themselves with information.

LGBT Cancer — Survivor Tips

No. 1: Be an active partner in the medical decisions that are made about
your life.
Don’t be passive. Learn about your disease, and participate in the decisions
that are made?.For example with my lymphoma, if I would have accepted the
first treatment offered, I’d be dead today. It was assumed that I only had a
mass in my chest. I later learned that the lymphoma was all through my body.

One of ten tips from Hamilton Jordan, the former White House chief of staff for President Jimmy Carter, a well-known force in the health community. During the past 24 years he battled four different forms of cancer and urged cancer patients to empower themselves with information.

LGBT Cancer Survivor Study

The LGBT Cancer Survivor Study is still active and seeking your participation.Lesbian, gay, bisexual and transgender cancer survivors are needed to participate in an internet study.  OutWithCancer is familiar with the work of these researchers and encourages your participation.  Please go to http://www.surveywriter.net/in/survey/survey807/CS.asp  and take part.

LGBT Cancer and Inspiration

Sometimes you just need an inspiration to get up in the morning.  Lesbian-feminist pioneer Barbara Hammer made a movie, A Horse Is Not a Metaphor,  while battling cancer and undergoing chemo treatment. 

LGBT Cancer may start with smoking

San Francisco, California-UCSF researchers recently launched a study to further evaluate the use of the Internet as a method to provide assistance to lesbian, gay, bisexual, and transgender (LGBT) smokers. Research indicates that the LGBT community has a higher rate of smoking than the general population. In some parts of the country, LGBT smoking rates can be as much as 50% higher than their heterosexual counterparts.

The study will evaluate LGBT-specific smoking treatment delivered by three methods: mail-based, Internet-based, and telephone-based. Participants will receive one of four treatments:

Mail-based Self-Help Treatment. Participants receive a manual to help them quit smoking. This manual provides information, recommendations, and tools to quit smoking. The manual includes information on smoking in the LGBTcommunity, information on smoking and HIV/AIDS, and information on smoking-related issues specific to LGBT individuals.

Internet-based Smoking Treatment. This treatment includes the self-help manual plus access to a website that provides the information and tools from the self-help manual described above. Participants also have access to a message board that will allow them to gain support and advice from other LGBT smokers as well as professionals from UCSF.

Phone Counseling Treatment. This treatment includes the self-help manual plus 6 counseling sessions conducted over the telephone. The counseling occurs during the first 3 months of participation and focuses on reviewing the information covered in the self help manual and providing support.

Internet plus Phone Counseling Treatment. This treatment includes the self-help manual, access to the internet-based treatment, and 6 telephone counseling sessions.

The study is a unique in offering participants cessation services that are highly convenient and private. To be eligible, individuals must be 18 years of age and identify as LGBT.

For further information about the study, visit  www.iquit.medschool.ucsf.edu.